Hi Everybody!
Well, I haven’t written since I was in to see the DR this week, so I need to get you all caught up on what the future may hold for me.
Seems the medication for the metastisized cancer on my bones, has typically been given for life. But, it’s typically been given to patients whose “life” was termed in set number of years or months. Whereas, we aren’t attaching that to me, nor others in the same situation, so now, they are trying to decide “How long DO we give this to these patients?” I know the one medication is to be taken from 5-10 yrs. But, the one that actually has radiation in it, and the one that goes with it, for the bones, has been showing some really great signs of attacking the cancer itself, so they feel that while it not only decreases my risks for fractures in those affected bones, it also increases my chances of not having the cancer make a comeback. And anyone who has had cancer, knows that there is always the possibility for that to happen.
This just seems to be one of those little silver linings that seem to make that dark cloud that is always present in the future days and years of a cancer survivor seem just a little lighter. I thouhgt that was some pretty good news to hear, after hearing I may be taking this IV med for YEARS!!!! Something similar to the line of “a little bit of sugar makes the medicine go down!”
Anyway, I was a bit concerned when I had the radiation that the DR didn’t have them mark/map me out to radiate the spots on my pelvis. He (the Radiation DR) said that the other meds would take care of those, but I was still a little uneasy. Then last week when I saw the Medical Oncologist, he said the same thing that the spots were actually small, and that the IV meds that I’m taking will take care of them, and if not, then later we will decide if we have to do more radiation, but for now, let’s see if this works. So, that was good enough for me to have both of them agreeing that it’s ok to take a “wait and see” approach to some of it.
And I must say that if this is all the more side effects I’m going to have from the larger doses of radiation as opposed to the several milder ones, I’m glad I got the larger. I’m a bit tired, but not nearly as bad as chemo was. My skin is a bit dry, but again, not any worse than it was with chemo. Some of the continued sore mouth could be from the radiation, since I’m 5 wks out from my last chemo, I’m thinking the radiation has to be causing it now. But, even if it is, again, it is STILL not as bad as the chemo, so, basically, if one can get thru chemo, radiation is a piece of cake? Maybe, we will see, since the say that some side effects and reactions do not happen until weeks out. I will just continue to pray that the Lord has decided that I did such a good job of withstanding chemo so well, that I deserve a break
I do have to start taking some pretty high dosages of calcium & Vitamin D, well, I guess it’s not that high for the calcium (400mg), but 400 I.U. of D is kind of high for most people. Just more pills for me to take. I feel like a I ought to rattle when I walk!
Wow! I just looked at my calendar to see what’s up this week, and except for a phone call to my regular DR tomorrow to get some prescriptions straightened out with the insurance company, and a cancer support meeting on Tuesday late after noon, I don’t have ANYTHING else on my calendar except working on finishing up my cookbook! Halleleujah! I’m going to make my deadline for sure! I’ve been focusing on being done by this next weekend, and it looks like I’m going to be able to make it. That’s a real bonus to my spirits for sure. I might even have trouble going to sleep in a while I’m so excited!
But, I need to go pretty soon, as it is after 11 and I’ve been finding that if I go to bed before midnight, I can get up earlier (instead of sleeping 15 hours). Either that, or I’m finally getting used to this new medicine and it’s working more correctly. It’s one of those that definitely causes you to sleep, but not so much after your body gets used to it. It replaces my sleeping pill completely, and is supposed to help me decrease my anxiety and depression medications, which will be nice too. I’m all in favor of cutting back the number of pills I take
Besides if it helps to stablize my moods as it is implicated to do, that’s a plus. I’ve been having more anxiety attacks since the diagnosis of cancer, which is I’m sure not out of the ordinary, but that doesn’t mean I have to like it, nor live with it
I’m working hard at getting my pains meds on a real steady schedule too. I’ve got a timer program on my computer, and since I’m near either my desktop or laptop most of the time, I’ve got it set, and then instead of turning it off, I just tell it to remind me again in two hours. So, far today and yesterday I’ve done real good, and my back, pelvis, shoulder, and knees, have been doing pretty good. We will see how well I can stick to it all week! hahaha Don’t ask me what I’m going to do on days that I’m not just sitting around all day, because I don’t have an answer yet!
Well, I guess that pretty much brings you up to date again, and gives you the latest news. So, until next time, please keep me in your prayers, and don’t forget to write me once in a while just for conversations
God’s Blessings upon all of you and your families. May He guide and directs us all to do and say things which will benefit His kingdom and show His light shining thru us.
Hugs to all,
Sherry

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